Sunday, February 24, 2019

Featured Articles and Podcasts

I am a wife, mother and writer who happens to be completely blind. I started writing because people seemed interested in our rather unique family situation.  My husband is currently the only sighted member; we are raising two blind children, whom we adopted from Eastern Europe.I am expecting our third child in April, my first pregnancy. I have my msw from Florida State University and have worked as a case manager at a homeless shelter, in a group foster home and have taught adaptive technology and directed a summer camp for blind and sighted kids.
I began writing about adoption, parenting and blindness issues on this blog, back in August of 2018.  It took some time and a lot of encouragement from my wonderful husband, but I finally decided to submit some of my writing to other parenting sites. I thought perhaps my perspective would be interesting and informative to some but it was still a huge step to take that leap.
This is a list of articles that have been published outside my blog. I hope you will enjoy reading them and feel free to share any that you think your friends might find interesting and/or amusing. :)

Scary Mommy

I’m a Blind Mom Raising blind Kids, Here’s What I’d Like You to Know


My Blind Daughter was Called Wierd by Another Kid


the Mighty

Learning What it Means to be a Blind Mom


What Does Independence Mean
I'm Blind, Not Deaf


Filter Free Parents

Three Questions Never to Ask a Family that Has Adopted




Her View from Home

The Work of Marriage Matters

For Every Mom

 When Being a Mother Didn't Make Me Feel Happy
Four Years Later: a Letter of Encouragement to My New Mom Self


Fellow Moms, Let's Include Our Kids in the Holiday Work

 Learning to Serve my children

 Inspire More

 A Lesson in Strength From My Ten Year Old Son 
I'm a Blind Mother Parenting Blind Children 
Witnessing Strangers Become Siblings 
Experiencing the Grand Canyon Without Sight 
Adoption Matters: a Story of Four Boys

Podcasts

Revive

Episode: 06/11/2019

Real Talk: All Things Inclusion

 Episode 84 08/23/2019

The Adverse Effect

 Episode 33: A Blind View with Ashley Wayne

Sunday, February 17, 2019

A Letter to My Son: Keep Overcoming

Dear son,
I remember when I first met you in that eastern European orphanage.  You couldn’t walk, but rather stumbled and stomped about, and only when a worker held you up by your hands.  Your legs were weak and your steps extremely uncertain.  Your skin was pockmarked, and you were so thin for your age of seven and a half years.
It is not our proudest moment to say this, but your dad and I were nervous.  We had been told that you were blind, just as your sister and I are.  We were familiar and comfortable with blindness; it was already our normal.  However, we were also told you had cerebral palsy, but to what extent, we had no idea.  We honestly didn’t know much about cerebral palsy.  We were told repeatedly by the orphanage staff that your entire left side was weak, and we should avoid things like holding your left hand, for example.  When we visited you at meals, all you ever had was runny soup and a piece of bread.  You didn’t know any English, and our questions to your caregivers about your schooling were met with vague, roundabout answers.  But son, please do not be angry at those who cared for you before you became ours.  They were doing the best they could with what little time, information and resources they had.  We hold no malice towards them, and I hope you won’t either.
 Please believe me when I say that I’m not bringing up any of these things about your past to shame or humiliate you.  On the contrary, I want you to know where you came from so you can all the more easily see how far you’ve come!  I want you to see how truly incredible you are and how your determination has impacted your dad and I.  I want others to learn from your perseverance and strength of will.  You’ve only been home with us for 17 months, but in such a short amount of time, you have overcome in so many areas!  You have astounded so many people, including us.
Keep overcoming your supposed physical limitations.  When you first came home, we wondered if you would be able to climb the stairs, unassisted.  Within two days, your dad had taught you how to use both hands on the railing for support and you were navigating those stairs!  Within a couple weeks, you had learned to scoot around the living room and you reveled in this new-found independence.  When we first took you to physical therapy, it was doubted whether you would ever be able to walk on your own.  You started to use a walker and loved it but we weren’t sure if you would ever be able to be without it.
 Within three months of coming home, you took your first tentative, unassisted steps at grandma’s house!  I wish you could understand how proud of you your dad and I were at that moment and what an incredible feat you were accomplishing! You were so scared but determined, and you let the excitement of getting to ring that musical doorbell at grandma’s front door, motivate you to walk farther and farther on your own. 
 
When you first came home, you were afraid to use your left hand for anything.  Now, you know that God gave you two good, strong hands and you are using them both to play piano.  When you first came home, the heaviest thing you most likely ever lifted in your orphanage life was your shoes.  Now, you are gaining the upper body strength to hold your own growing body weight on one of the uneven bars at your sister’s gymnastics facility.  In your orphanage life, you mostly sat on a couch, with only a TV or radio for amusement.  Now you are running down our hallway, jumping on your trampoline and even jumping some without support!  Your legs continue to grow even stronger; you are now also able to pedal your new adaptive bike!
My son, keep overcoming in your learning.  You have grasped English incredibly well for how short a time you’ve been home with us!  If I were suddenly uprooted and thrown into a place where no one spoke my language or understood anything I said, I’d be a bawling mess!  But not you.  You aren’t afraid to put yourself out there and just talk to people.  I love seeing you at church, the playground or restaurant, talking with whoever will listen.  You have learned so many new concepts since you’ve been with us.  You can read short sentences using embossed print letters and braille as well. You have a knack for phonics and spelling and are grasping the basics of grammar.  You are learning how to add and subtract and are even learning about the geography of United States, this new place that is your home.
You have already become so much more than I think anyone in your home country would have imagined.  Honestly, you have amazed me.  Yes, your dad and I try every day to give you the opportunities, encouragement, and tools to overcome.  We try and challenge you to learn and work as hard as you can.  But if you did not have the desire to overcome, to become more, the drive to push yourself, even when it’s hard, none of what we do would matter.  My son, keep overcoming!  My son, keep teaching us and everyone around you that a person doesn’t have to be defined only by their disability, current circumstances or for that matter, their past.  We are so glad to be a part of your journey of overcoming and can’t wait to see how far the next years take you! Your dad and I are so proud of you.
Your Parents

Sunday, February 10, 2019

Unexpected Lessons of Motherhood

Before I actually had kids of my own, I thought of motherhood as primarily a teaching role.  This seems laughable now, as I have very quickly become aware of how many different and unrelated tasks I have to keep up with every day.  I suppose this fixation on teaching came from all I remembered my mother doing to prepare me for life and how she tried to make any mundane experience a teaching moment.  I intellectually knew that motherhood involved so much more than the teaching component, but for some reason, this was where my focus rested.  Before I actually became a mother, I was often worried about how I would go about teaching my kids.  There were so many facets of living, how could I accurately and diligently cover them all, without making life utterly boring for my poor children?  I’d spend time thinking about what life lessons were essential.  I was concerned, not sure if I was really cut out to navigate them through the craziness and complexity of life.  I found myself worrying about everything from teaching them how to handle unkindness from others, money management, generosity, cleanliness, and everything in between.  Needless to say, all that planning and pondering accomplished little.  When we first brought our daughter home three years ago, it didn’t take me long to realize that, while I did have a responsibility to teach her about the world and how it all works, she (and her brother, who soon followed, would be teaching me just as much.  These are lessons I am still in the process of learning each day.
I am slowly learning that time together is more important than tasks.  I quickly found as a mother that, if I’m not careful, I can spend all my time doing things for my kids instead of simply doing things with them.  It is so easy to become focused on the tangible tasks, like making sure their clothes are always clean, making sure they have good food to eat and making sure that their rooms are kept tidy.  While these things are important, I can’t let them keep me from just playing with my kids, even if it is in their messy rooms.  They value time with me, and I need to honor that.  They would rather play "Connect 4" or tag then have dinner be punctually on the table by 6 P.M every night.  When I do slow down (regrettably less than I wish), it’s amazing what ends up happening.  The tasks still get done, just a bit later than normal, and they and I thoroughly enjoy our time together!  Overall, that day is less stressful, and the kids are even somewhat better behaved.
I am learning that I need others.  I was born blind, and as I went through middle/high school and college, I found myself feeling that I had to do it all.  I had to prove that blind people were just as capable as anyone else in literally everything.  I felt that, if I didn’t do this, I was giving all blind people everywhere a negative reputation.  Needless to say, this attitude was exhausting and untenable long term.  Parenting has quickly removed any last remnants of that way of thinking from me.  We all need each other.  We need each other’s wisdom, strength, encouragement, accountability and kindness.  I can learn just as much from another sighted parent or one who is blind like I am.  Parenting shouldn’t be a solo effort. All that will do is exhaust us, and our kids will feel our exhaustion and think that they don’t need others either.
I am learning, and this is the hardest for me because it hits my pride, that I am not the person I thought I was.  If you had asked me before kids came along, I would have said I figured myself to be a fairly low-key person.  I didn’t get easily upset, wasn’t petty, was fairly patient and I wouldn’t have really described myself as selfish.  Well, the constant needs of my children and the physical and emotional demands of being a mother have shattered all my delusions of grandeur in regards to my wonderful personality.  I quickly discovered, to my shame, that I am the opposite of who I thought I was.  However, I have found that God, through my children, is turning even this into a beautiful new opportunity and yes, another teaching moment.
I am learning about forgiveness.  My kids are so quick to forgive and continue on as if nothing happened.  They are so quick to look past my short temper and frustrated, hurried answers, as I struggle to fold laundry and make dinner.  This constantly reminds me that there is another chance and that God is using my kids to grow and drastically change my character.  It is a beautiful and frightening thing, but I am so glad I am experiencing it.  So now, while I strive to raise my kids the best I can, I am grateful for all they are teaching me, even if at times I am an unwilling student.